by AKU | Jul 31, 2020 | Uncategorized
We are trying to diagnose new patients in the UK by asking people with black spots on the white of their eyes to send us photos of the black spots to see if they need a test for AKU. As a lot of you are aware, the pain from AKU gets worse when patients are...
by AKU | Mar 19, 2020 | Uncategorized
—————–Update: 8th October 2020 —————- Since our last update, the picture across the country is changing rapidly. Each home nation now has its version of advice and regulations that need to be reviewed before making any decisions on when and if you mix with...
by AKU | Feb 28, 2020 | Uncategorized
It seems like yesterday when I met Robert Gregory. He came to the hospital with his niece who was referred to exclude alkaptonuria (AKU) – before I knew it Robert had registered an AKU Society with the Charity Commission, with me as Medical Director/Co-Founder –...
by AKU | Jan 31, 2020 | Uncategorized
In this week’s blog, we look at the much-anticipated relaunch of the AKU Society website. Our new site has been designed to be much more user-friendly, accessible and easier to navigate while allowing the most important content to be front and centre. Earlier last...
by AKU | Dec 16, 2019 | Uncategorized
Today’s blog is written by the head of the Brazilian AKU Society, Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) which is based in Bethesda, Maryland, USA.In September...
