Donate

by AKU | Jul 19, 2023

EVERY LITTLE COUNTS Every donation we receive goes to help fund the vital work that we do as a charity, through funding patient support, community-building events and essential medical research. Make a donation below to help support patients suffering from the...

Home

by AKU | Jul 13, 2023

Alkaptonuria Society  Alkaptonuria is a rare inherited disorder WHAT IS AKU? About Us AKU Blog ALKAPTONURIA EXPLAINED Alkaptonuria, also known as AKU or Black Bone Disease, is an extremely rare genetic condition, which can cause significant damage to the bones,...

AKU Patients and COVID-19

by AKU | Mar 19, 2020 | Uncategorized

—————–Update: 8th October 2020 —————- Since our last update, the picture across the country is changing rapidly. Each home nation now has its version of advice and regulations that need to be reviewed before making any decisions on when and if you mix with...

Media Trust Summit 2015

by AKU | Nov 17, 2015 | Uncategorized

Media trust is a charity that gives a voice to other charities, community groups and young people by providing them with a range of media training from experts in the field. Last week Eve attended the Media Trust Summit, where a number of charities and...

From London to Cambridge

by AKU | Sep 23, 2015 | Uncategorized

On Sunday 13th September, a small team set out bright and early to pedal the 70 mile distance from London to Cambridge. Why? To raise money for our first ever international workshop of course! Our Online Communications Officer, Sorsha, was one of the...