Meet Georga: Our New Communications Officer

by AKU | May 29, 2025 | AKU Blog

I’m Georga Chilton, the new Communications Officer at the AKU Society. I’m excited to be part of the team and wanted to take a moment to introduce myself, share a little about my journey into communications, and talk about what I’m looking forward to as I settle into...

Documentory

by AKU | Apr 16, 2025

Join Black Bones – A Documentary About Living with Alkaptonuria! We are excited to announce the start of Black Bones, a powerful documentary dedicated to telling the real stories of people living with alkaptonuria (AKU). This film will not only raise awareness but...

Liesbeth’s research visit to the University of Liverpool

by AKU | Feb 15, 2024 | AKU Blog

Our latest blog is written by Liesbeth Desmet, a PhD student at the Vrije Universiteit Brussel (VUB). She recently participated in our early-stage researcher bursary programme to visit the University of Liverpool and expand her knowledge of AKU research: I am a PhD...

History of AKU

by AKU | Aug 14, 2023

History of AKU The discovery of AKU AKU was first described as an inherited disease by Sir Archibald Garrod¹ in 1902. Sir Archibald was a true pioneer – relying upon simple observations to understand fundamental aspects of human biology. He was an Edwardian doctor who...

Our Staff

by AKU | Aug 3, 2023

Our Staff Staff Nick Sireau CEO & Chairman of the Trustees Ever since Nick’s sons were diagnosed with AKU, he has been involved with the society. When it was set up in 2003, Nick became a trustee and has served as CEO since 2010.  Now, as Chairman of the trustees,...