How Can Patient Organisations Improve Clinical Research?

How Can Patient Organisations Improve Clinical Research?

Last week, Oliver presented the DevelopAKUre project at a meeting for the Dutch Organisation of Biotechnologies Companies (HollandBIO). DevelopAKUre has close links to the Dutch company, PSR, who act as the medical monitors in our clinical trials. This week’s blog...
Running the Cambridge Half Marathon to Support AKU

Running the Cambridge Half Marathon to Support AKU

The AKU Society has been doing lots of fundraising to raise money for our first International Patient Workshop due to take place on 20th April. In this week’s blog we introduce some of our Cambridge Half Marathon runners and explain our plans to expand our...
Our Runners at the Cambridge Half Marathon 2016!

Our Runners at the Cambridge Half Marathon 2016!

The AKU Society’s office is based in the beautiful city of Cambridge, and on 28th February we were lucky enough to have nine brave supporters taking part in the Cambridge Half Marathon for AKU! We are thrilled to announce that in total they raised a huge £2,427, which...
From London to Cambridge

From London to Cambridge

On Sunday 13th September, a small team set out bright and early to pedal the 70 mile distance from London to Cambridge. Why? To raise money for our first ever international workshop of course! Our Online Communications Officer, Sorsha, was one of the...

National Transplant Week: Can I Donate?

Are you a registered organ donor? Did you know, even if you have a genetic condition, you can still join the NHS Organ Donor Register? It’s National Transplant week, and today Hannah, our Patient Support Manager, talks about organ donation, and what AKU...