by AKU | May 24, 2019 | Uncategorized
Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Congress, set up by Dr Olivier Menzel and his BlackSwan Foundation, is so important. At its first gathering,...
by AKU | Apr 3, 2019 | Uncategorized
Last week I attended the FSI skills conference that gave various training sessions specifically designed for small charities. This week’s blog talks about the tips and lessons taken from the day. FSI is a charity that provide a range of skills and training...
by AKU | Mar 8, 2019 | Uncategorized
Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They raised a remarkable combined total of £651.82. Our fundraising officer, Juliet, was there on the day and told us more about how the day went. Unfortunately, it was a...
by AKU | Feb 22, 2019 | Uncategorized
The Cambridge Half Marathon is Next Sunday. On the 3rd March our two runners will tackle the roads of Cambridge for the for AKU Society. In this week’s blog, we will introduce you to two of them. Our runners have been training hard, and they are all raising vital...
by AKU | Aug 29, 2018 | Uncategorized
In 2012, AKU Society CEO Nick Sireau and others founded a charity called Findacure. Findacure helps rare disease patient groups get off the ground. The hope is that all can enjoy the same success as the AKU Society. We covered them on our blog on 11th April – check it...
