by AKU | Oct 22, 2014 | Uncategorized
On Thursday 16th October our Eighth International Workshop on AKU was held in Stockholm, Sweden. Just the day before, on Wednesday 15th October, we received the news that Robert Gregory, co-founder of the AKU Society, and himself an AKU patient, had sadly...
by AKU | Aug 6, 2014 | Uncategorized
Next week we will be launching the research and science expert forum on PatientsLikeMe. Before the week begins, we would like to give you a little more information on the structure of the events. We also have a few more experts to reveal! The research and science...
by AKU | Jan 25, 2014 | Uncategorized
With Rare Disease Day just three days away, we are already getting ready to campaign, celebrate and raise awareness. In today’s blog we explain what Rare Disease Day is, and how you can get involved. Awareness Rare Disease Day happens on the last day of February...
