by AKU | May 6, 2015 | Uncategorized
So far as a charity our biggest community fundraising projects have taken the form of crowdfunding campaigns. Aside from these, grant applications have been our main source of funding, alongside the occasional sponsored event organised by our dedicated supporters. We...
by AKU | Apr 29, 2015 | Uncategorized
In mid-April, Eve attended the Specialised Healthcare Commissioning Alliance (SHCA) meeting in London. The alliance, formed of patient-related groups and corporate members, meet quarterly to campaign on behalf of people with rare and complex conditions in need of...
by AKU | Apr 22, 2015 | Uncategorized
On Friday 17th April we sponsored the Findacure workshop on the topic of communications and PR for small patient groups. The AKU Society decided to sponsor this event in order to share what we have learnt about communications whilst undertaking our Reaching...
by AKU | Apr 8, 2015 | Uncategorized
On Thursday last week, we attended the launch event for the Cambridge Rare Disease Network at the Judge Business School in Cambridge. Our very own Nick Sireau spoke at the launch, as did several of the network’s other founding members. The Cambridge Rare Disease...
by AKU | Mar 25, 2015 | Uncategorized
At the start of March, Eve and Hannah attended an event run by the Patient Information Forum (PiF) in Manchester. The event focused on evaluating and measuring the impact of health information. In this week’s blog Eve outlines the day, and its benefits to the...
