by AKU | Jun 17, 2015 | Uncategorized
Last week was a busy one, with not one, but two events focusing on how pharmaceutical companies and patient groups can work together to create better research. On Monday and Tuesday, Oliver attended EyeForPharma’s conference: “Patient-Centric Clinical Trials”. On...
by AKU | Jun 3, 2015 | Uncategorized
Roll up roll up, because today we launch our spectacular raffle! In today’s blog find out why we are doing the raffle, what prizes are up for grabs, and how you can buy and sell tickets. An International Patient WorkshopDue to its rarity, it’s often difficult to get...
by AKU | May 27, 2015 | Uncategorized
We’ve got some free charity spaces up for grabs for the upcoming Spartan races this year. But what is the Spartan race, and what makes it different from your standard charity run? In this week’s blog we explain the challenge, and ask you if you are up for it. The...
by AKU | May 20, 2015 | Uncategorized
Today we introduce the new Coordinator for the National Alkaptonuria Centre (NAC) in Liverpool. Hollie Washington is 25, and has lived in Liverpool all her life. This week she has traveled all the way down to Cambridge to visit the AKU Society office, and learn all...
by AKU | May 13, 2015 | Uncategorized
At the end of April, Nick was in the USA attending the World Orphan Drug Congress. In today’s blog he tells us why he attended the event, and what he learnt from his time there. I’m just back from the World Orphan Drug Congress USA in Washington DC, where I...
