by AKU | Jan 4, 2016 | Uncategorized
With Christmas all but over and the New Year well underway, we take a look at all the exciting plans we have for 2017. From fire walks to Children’s Workshops. Last year was amazing for everyone here at the AKU Society, from the incredibly successful...
by AKU | Dec 9, 2015 | Uncategorized
Last Friday the AKU team had a training session with Sookio, a communications for the web and social media organisation. This week’s blog talks about the many tips and skills we learnt throughout the session! Writing for the web is an important part of the AKU...
by AKU | Nov 11, 2015 | Uncategorized
Last week, Oliver attended the project board meeting of ASTERIX. Oliver represents the DevelopAKUre clinical trials on their patient think tank, and in today’s blog explains how the involvement helps the AKU Society. ASTERIX is a European Commission funded...
by AKU | Nov 4, 2015 | Uncategorized
Rare disease patients often report feeling lonely and isolated due to the lack of understanding surrounding their disease. Patients are sparsely located all over the world and it can be difficult to identify and connect with other patients. This is why we...
by AKU | Oct 28, 2015 | Uncategorized
Wednesday 25th November is Sir Archibald Garrod’s birthday and to celebrate we are asking our supporters to host a Coffee Morning to raise awareness and money for AKU. In this weeks blog, AKU team members Eve and Lydia bake their own cakes to share recipe ideas...