DevelopAKUre The DevelopAKUre programme was a series of major international clinical trials, run by a consortium of 12 European partners. It aimed to study a drug, called nitisinone, and assess its effectiveness in treating AKU. The DevelopAKUre clinical trials...
AKU Society Blog Date: Month Jan Feb Mar Apr May Jun Jul Aug Sept Oct Nov Dec 2023 2022 2021 2020 2019 2018 2017 2016 2015 2014 2013 Liesbeth’s research visit to the University of Liverpool Read More 15th Feb 2024 Nitisinone programme for international patients...
Research Our ultimate goal is to cure AKU. We are committed to funding and collaborating on research into increasing our understanding of AKU and working on potential treatments and cures for the condition. Our current projects include treating nitisinone-induced...
Information for Healthcare Professionals Alkaptonuria (AKU) was the first condition noted as following Mendelian Inheritance by Sir Archibald Garrod in 1902. ¹ Since then, more work has been done to understand its genetic mechanism. AKU is now understood to be a...
Information and Support ALKAPTONURIA EXPLAINED Alkaptonuria, also known as AKU or Black Bone Disease, is an extremely rare genetic condition, which can cause significant damage to the bones, cartilage and tissues of those affected. AKU normally only affects one in...
