by AKU | Sep 10, 2025 | AKU Blog
Raising awareness of Alkaptonuria (AKU) is at the heart of what we do at the AKU Society. As a rare condition, AKU is often misunderstood or overlooked. This lack of awareness can delay diagnosis, limit support, and leave patients feeling isolated. That is why patient...
by AKU | Jul 18, 2025 | AKU Blog
Alkaptonuria (AKU) is a rare genetic condition that affects 1 in 250,000 to 500,000 people globally. Caused by a missing enzyme that breaks down a substance called homogentisic acid (HGA), AKU leads to the darkening of bones and cartilage, and can cause joint damage,...
by AKU | Jul 18, 2025 | AKU Blog
When it comes to choosing the right kind of activity, low-impact exercises can help slow the progression of osteoarthritis- a common complication of Alkaptonuria (AKU). While high-impact and contact sports are typically discouraged due to the stress they place on...
by AKU | May 29, 2025 | AKU Blog
I’m Georga Chilton, the new Communications Officer at the AKU Society. I’m excited to be part of the team and wanted to take a moment to introduce myself, share a little about my journey into communications, and talk about what I’m looking forward to as I settle into...
by AKU | Apr 10, 2024 | AKU Blog
We are excited to announce the launch of our global AKU patient registry. Our registry will play a crucial role in increasing our understanding of AKU and driving research into potential treatments and cures. Over the past year, we have been working with...
