DevelopAKUre – A History
Today's blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in 2003 that I sat down with Robert Gregory, Prof Alan Shenkin an [...]
Sociological Study on Treatment for AKU in the UK
My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK healthcare. The study is sociological which means it will focus on [...]
Other Ways to Give to the AKU Society
In this week’s blog, we explain how you can donate to the AKU Society through mobile giving, online shopping, payroll giving and Facebook Donation. T [...]
Stand Up To AKU Comedy Night – Liverpool 2019
Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of June at the Hot Water Comedy Club in the centre of Liverpool. Overall, we raised £694, th [...]
RCN Congress May 2019
The Royal College of Nursing (RCN) Congress is the biggest event of the nursing calendar and attracts more than 4,000 nurses from across the UK and b [...]
RE(ACT) Congress America 2019 – Toronto
Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Cong [...]
Donating to us via Facebook
Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people on Facebook every month, Facebook can be a brilliant place for [...]
Stand Up to AKU Comedy Night 2019 – Raffle Prizes!
Our annual ‘Stand Up to AKU’ night is rapidly approaching and here at the AKU Society, we are all very excited. On Sunday 9th June, we have four fant [...]
Meet the patient – Simon Laxon
Today’s blog is written by AKU patient Simon Laxon. In it, he writes about his experience with the disease and how the National Alkaptonuria Centre ( [...]
Stand Up To AKU 2019!
We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are heading back to Liverpool’s legendary Hot Water Comedy Clu [...]