Social and Financial Information Financial Information AKU is a debilitating disease. It can leave patients unemployed, immobile and in need of care. If you are worried about the financial implications of living with AKU, this page will list where to find help, with...
Self-Management Managing Pain With Alkaptonuria Joint pain is a serious and debilitating symptom of AKU. Inadequate pain control may lead to limited use of the affected joint, reducing its range of movement. Physical and occupational therapy are important to maintain...
History of AKU The discovery of AKU AKU was first described as an inherited disease by Sir Archibald Garrod¹ in 1902. Sir Archibald was a true pioneer – relying upon simple observations to understand fundamental aspects of human biology. He was an Edwardian doctor who...
Contact Us For general enquiries please email: [email protected] For patient support or referrals please call: 07586759028 Post: AKU Society, 66 Devonshire Road, Cambridge, CB1 2BL Please note: We cannot accept cheques from outside the UK. If you wish to...
DevelopAKUre The DevelopAKUre programme was a series of major international clinical trials, run by a consortium of 12 European partners. It aimed to study a drug, called nitisinone, and assess its effectiveness in treating AKU. The DevelopAKUre clinical trials...
