Beyond the Biology: The Emotional Landscape of AKU

Beyond the Biology: The Emotional Landscape of AKU

by | Jul 18, 2025 | AKU Blog

Alkaptonuria (AKU) is a rare genetic condition that affects 1 in 250,000 to 500,000 people globally. Caused by a missing enzyme that breaks down a substance called homogentisic acid (HGA), AKU leads to the darkening of bones and cartilage, and can cause joint damage,...
Meet Georga: Our New Communications Officer

Meet Georga: Our New Communications Officer

by | May 29, 2025 | AKU Blog

I’m Georga Chilton, the new Communications Officer at the AKU Society. I’m excited to be part of the team and wanted to take a moment to introduce myself, share a little about my journey into communications, and talk about what I’m looking forward to as I settle into...

Documentory

by | Apr 16, 2025

Join Black Bones – A Documentary About Living with Alkaptonuria! We are excited to announce the start of Black Bones, a powerful documentary dedicated to telling the real stories of people living with alkaptonuria (AKU). This film will not only raise awareness but...

Resources

by | Oct 31, 2024

Resources Aubergine Stroganoff By AKU Serving Suggestion: 2 servings Nutritional Information Total Calories (kcal) Total Protein (g) Ad... Beetroot & Lime Hummus By AKU Serving Suggestion: 6 Nutritional Information Total Calories (kcal) Total Protein (g) Adjusted...