Information For International Patients aimAKU aimAKU is the patient support group for AKU patients and their families in Italy. Access their website here. AKU Society APAC The AKU Society of Asia-Pacific is the patient support group for AKU patients and their families...
Patient Communities Rare disease patients often report feeling lonely and isolated due to the lack of awareness and understanding surrounding their disease. Patients are sparsely located all over the world and it can be difficult to identify and connect with one...
Safeguarding Policy Purpose The purpose of this policy is to protect people, particularly children, at risk adults and beneficiaries of assistance, from any harm that may be caused due to their coming into contact with The AKU Society. This includes harm arising...
AKU Privacy Policy Registered in England and Wales Company Ltd. by Guarantee No. 0481412A charity registered in England and Wales (no. 11001052) Updated on 25th May 2020 Your privacy is important to the AKU Society. This privacy statement provides information about...
Other Symptoms Alkaptonuria (AKU) is a multisystemic condition that can affect multiple areas of the body. The symptoms of AKU vary from one person to another. Those described here do not necessarily apply to every patient but generally will be seen to some degree....
