Research and funding policies As a patient-group charity, we are committed to ensuring the medical research we fund is always conducted to meet the needs of our community. This is achieved through our membership of the AMRC, our funding peer-review process, and our...
AKU Global Patient Registry If you have been diagnosed with AKU anywhere in the world, you can make an important contribution to our research into understanding, treating, and curing the condition. Join the registry What is the AKU patient registry? Our global...
Funding opportunities We are constantly looking to fund research into developing new treatments and potential cures for AKU. The majority of our research is conducted in partnership with the University of Liverpool as well as a number of international partners. Below...
Hypertyrosinaemia We are currently conducting research into treating nitisinone-induced hypertyrosinaemia¹ in partnership with a number of collaborators including the University of Liverpool. Nitisinone is an extremely effective treatment which reduces homogentisic...
Impact Reports We produce annual impact reports to highlight the work we have done over the past year and to ensure that we continue to provide the highest level of care and support for our patients whilst driving forward research into treating and curing AKU. Our...