Diet Diet & AKU: Controlled Protein Diet With Nitisinone Patients who are not taking nitisinone should not change their diet without consulting their doctor. Children should not reduce their protein levels. When patients attend the National AKU Centre (NAC) and...
Self-Management Managing Pain With Alkaptonuria Joint pain is a serious and debilitating symptom of AKU. Inadequate pain control may lead to limited use of the affected joint, reducing its range of movement. Physical and occupational therapy are important to maintain...
History of AKU The discovery of AKU AKU was first described as an inherited disease by Sir Archibald Garrod¹ in 1902. Sir Archibald was a true pioneer – relying upon simple observations to understand fundamental aspects of human biology. He was an Edwardian doctor who...
Our Staff Staff Nick Sireau CEO & Chairman of the Trustees Ever since Nick’s sons were diagnosed with AKU, he has been involved with the society. When it was set up in 2003, Nick became a trustee and has served as CEO since 2010. Now, as Chairman of the trustees,...
Safeguarding Policy Purpose The purpose of this policy is to protect people, particularly children, at risk adults and beneficiaries of assistance, from any harm that may be caused due to their coming into contact with The AKU Society. This includes harm arising...
