Beyond the Biology: The Emotional Landscape of AKU

by AKU | Jul 18, 2025 | AKU Blog

Alkaptonuria (AKU) is a rare genetic condition that affects 1 in 250,000 to 500,000 people globally. Caused by a missing enzyme that breaks down a substance called homogentisic acid (HGA), AKU leads to the darkening of bones and cartilage, and can cause joint damage,...

Documentory

by AKU | Apr 16, 2025

Join Black Bones – A Documentary About Living with Alkaptonuria! We are excited to announce the start of Black Bones, a powerful documentary dedicated to telling the real stories of people living with alkaptonuria (AKU). This film will not only raise awareness but...

Workshop FAQs

by AKU | Aug 29, 2024

Workshop FAQs Where is the workshop taking place? The workshop is being held at Holiday Inn Liverpool City Centre, Lime Street, Liverpool, L1 1NQ It is located right opposite Liverpool Lime Street train station, and has access to a secure car park, so provides...

AKU International Patient Workshop 2024

by AKU | Jun 21, 2024

AKU International Patient Workshop 2024 This year, the AKU International Workshop takes place on the 13th and 14th November, at The Holiday Inn, Liverpool, UK. We will be welcoming attendees from around the world for this two day event, to learn more about AKU from...

Vacancies

by AKU | Jun 5, 2024

Vacancies Vacancies  Please find current job opporuntities at the AKU Society below: Fundraising and Communications Officer Deadline: 28th June 2024 Please find the job description here. Apply by sending a CV and covering letter to nick@akusociety.org...