Safeguarding Policy Purpose The purpose of this policy is to protect people, particularly children, at risk adults and beneficiaries of assistance, from any harm that may be caused due to their coming into contact with The AKU Society. This includes harm arising...
AKU Privacy Policy Registered in England and Wales Company Ltd. by Guarantee No. 0481412A charity registered in England and Wales (no. 11001052) Updated on 25th May 2020 Your privacy is important to the AKU Society. This privacy statement provides information about...
Other Symptoms Alkaptonuria (AKU) is a multisystemic condition that can affect multiple areas of the body. The symptoms of AKU vary from one person to another. Those described here do not necessarily apply to every patient but generally will be seen to some degree....
Heart Complications One of the most dangerous and potentially life-threatening effects of AKU occurs when HGA builds up in the arteries and inside of the heart. The HGA present in the blood sticks to the vessels and valves of the heart, causing them to harden. They...
Discolouration of Ears In the vast majority of patients, their ears will eventually begin to develop a blue-black colour. This is due to homogentisic acid (HGA) attaching itself to the cartilage present in ears. Like the spots in the eyes, this discolouration does not...
