Resources

This page provides resources for AKU patients, carers and their families. The information on this page includes leaflets about AKU and our services, impact reports, and newsletters. They are also available in Welsh, Polish, Punjabi, Urdu, Hindi and Gujarati.

AKU Society Leaflets

We regularly produce leaflets with the latest information about services available for AKU patients and carers. Please check back regularly for new leaflets and information.

The AKU Society – printable (1703 KB)
What is Alkaptonuria – Printable (2208 KB)
How AKU is Inherited printable(922 KB)
An Introduction to Alkaptonuria (AKU) – Children’s Booklet (4459 KB)

Virtual Garrod Day

Punjabi Versions

AKU Guide 2017 A5 Punjabi
(3171 KB)
How AKU is Inherited Punjabi (2245 KB)
The AKU Society Punjabi
What is Alkaptonuria v2 Punjabi (4884 KB)

Urdu Versions

Welsh Versions

Gujarati Versions

AKU Guide 2017 A5 Gujarati (3221 KB)
How AKU is Inherited Gujarati (2290 KB)
The AKU Society Gujarati (4497 KB)
What is Alkaptonuria v2 Gujarati (4941 KB)

Polish versions

Hindi Versions

Impact Reports

Our 2019 Impact Report showcases our work and highlights our key achievements:

AKUS impact 2019

Posters

Here you can see the our poster that won the poster competition at the 2020 European Conference on Rare Diseases (ECRD) hosted by EURORDIS.

ecrd poster 2020 AKUS 08.04.20 final

Newsletters

We post regular newsletters to our UK supports, keeping them updated on our news and work. You can access our most recent newsletters below:

Spring Newsletter 2017 (1901 KB)

Downloadable resources