As you are all aware, Covid-19 has changed the way a lot of services and organisations work. To ensure the safety of all staff, their loved ones and vulnerable people in the community, the trustees have decided that the AKU Society should now work remotely from home.
We will not be able to answer any calls to the office number for the foreseeable future. However, if you need to contact us, please see below.

Nick Sireau, CEO and Chair of Trustees: nick[email protected] 0788 670 9633

Lesley Harrison, Patient Support Manager: [email protected] 07586759028

Ciarán Scott, Head of Projects & Communications: [email protected]

Juliet Rowe, Fundraising Officer: [email protected]

The National Alkaptonuria Centre. (NAC)

Due to Covid-19, The Royal Liverpool Liverpool and Broadgreen University Trust and the NAC team have decided to cancel all NAC patients in April.
We are also advising all NAC patients due to attend the centre in May and June to hold off on booking any travel arrangements.

As you can appreciate, this situation is ever-changing. We will update all our patients as soon as we have updates and/or advice has changed. Lesley will contact all affected patients directly.

If you have any concerns in regards the NAC, please contact; [email protected] or Hollie Washington [email protected]nhs.uk