by AKU | Jun 24, 2015 | Uncategorized
Our fifth patient workshop took place at London Zoo on Saturday. It was a great opportunity for patients, family members and friends to meet one another, share experiences and learn more about AKU. The day started off with an hour’s zoo time, where everyone got the...
by AKU | Jun 17, 2015 | Uncategorized
Last week was a busy one, with not one, but two events focusing on how pharmaceutical companies and patient groups can work together to create better research. On Monday and Tuesday, Oliver attended EyeForPharma’s conference: “Patient-Centric Clinical Trials”. On...
by AKU | Jun 10, 2015 | Uncategorized
From the 5th-8th June, we were in Glasgow to attend the European Human Genetics Conference. As a charity, we were given a stand in the exhibition hall of the conference, allowing us to raise awareness of AKU at this fantastic event. In today’s blog Sorsha shares how...
by AKU | Jun 3, 2015 | Uncategorized
Roll up roll up, because today we launch our spectacular raffle! In today’s blog find out why we are doing the raffle, what prizes are up for grabs, and how you can buy and sell tickets. An International Patient WorkshopDue to its rarity, it’s often difficult to get...
by AKU | May 27, 2015 | Uncategorized
We’ve got some free charity spaces up for grabs for the upcoming Spartan races this year. But what is the Spartan race, and what makes it different from your standard charity run? In this week’s blog we explain the challenge, and ask you if you are up for it. The...
by AKU | May 20, 2015 | Uncategorized
Today we introduce the new Coordinator for the National Alkaptonuria Centre (NAC) in Liverpool. Hollie Washington is 25, and has lived in Liverpool all her life. This week she has traveled all the way down to Cambridge to visit the AKU Society office, and learn all...
