Fred Tranter – The First AKU Patient To Be Operated On?
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkabl [...]
BBC 4 Radio Appeal – Jess Tells Her Story
This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear [...]
BBC Radio 4 Appeal
We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broad [...]
2021 Online Mini Workshop – Round Up
In today's blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-fac [...]
At Home in Lockdown: Tips From A Psychotherapist
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the [...]
Online Mini Patient Workshop
We are delighted to announce that we will be hosting a mini online patient workshop for UK patients on February 11th. The Covid-19 pandemic has force [...]
EvolvAKUre: a Darwinian approach to develop a cure for AKU
This week's blog is written by Professor Joery De Kock and explains his exciting research into a cure for AKU. At the end of this blog, we have inclu [...]
2020 Christmas Appeal News
The AKU Society team and trustees hope you had a very Merry Christmas and wish you a safe and Happy New Year. In this week’s blog we look at our rece [...]
COVID-19 January 2021 Update – The AKU Society and The NAC
The AKU Society As you are all aware, Covid-19 has changed the way a lot of services and organisations work. To ensure the safety of all staff, thei [...]
AKU Society Christmas Appeal 2020
It's now more than a week since our Christmas appeal launched. Thank you to the people who have donated already. Your donations will help us fund our [...]