Through The Looking Glass- An AKU Story
This week's blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in [...]
BBC Radio 4 Success
We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including [...]
The National Alkaptonuria Centre (NAC) & COVID-19
Today's blog is written by Lesley Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for [...]
Fred Tranter – The First AKU Patient To Be Operated On?
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkabl [...]
BBC 4 Radio Appeal – Jess Tells Her Story
This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear [...]
BBC Radio 4 Appeal
We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broad [...]
2021 Online Mini Workshop – Round Up
In today's blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-fac [...]
At Home in Lockdown: Tips From A Psychotherapist
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the [...]
Online Mini Patient Workshop
We are delighted to announce that we will be hosting a mini online patient workshop for UK patients on February 11th. The Covid-19 pandemic has force [...]
EvolvAKUre: a Darwinian approach to develop a cure for AKU
This week's blog is written by Professor Joery De Kock and explains his exciting research into a cure for AKU. At the end of this blog, we have inclu [...]