Two AKU Patients from the US and their stories

“It’s a cartilage degeneration disease really. It’s like a sponge in the sink; it’s real good for a real long time, and then one day you pick up the sponge and it falls to bits in your hands.” Two AKU patients from the U.S tell their stories; how they were diagnosed, what it feels like to have AKU and their hopes for the future. Two doctors that have treated the pair speak of Alkaptonuria and the difficulties that lie in treating a patient with the disease.

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