Friday, March 27, 2015

On 27th March 2015 The Cambridge News ran a story about our CEO and Chairman, Nick Sireau, and his fight to find a treatment for his sons.

When Nick Sireau’s sons were diagnosed with alkaptonuria, or ‘black bone disease’, he decided to give up his job to find a cure – and now he’s helping others to do the same.

What would you do if you found out that your child had a disease so rare that there was no organisation to help, no treatment and no cure? Realistically, most people would just accept their lot and soldier on.

But when Nick Sireau discovered that his sons had black bone disease, which would lead to crippling osteoarthritis in later life, he couldn’t sit back. Instead, he gave up his job and dedicated his life to finding a drug that might just change everything – and it looks as though he’s found it.

You can read the full story online by clicking here