by AKU | Nov 7, 2017 | Uncategorized
Last week we welcomed Reece to the AKU Society’s team in Cambridge. As Admin and Communications Officer, he will be responsible for the team’s social media output, as well as a lot of our online and print advertising. His job also involves administering our patient...
by AKU | Nov 3, 2017 | Uncategorized
On 18th and 19th October, Lesley, our Patient Support Manager, and Carol, one of our AKU patients, went to the Birmingham NEC to run a stand at Best Practice 2017. In this week’s blog, we find out how they got on. Best Practice – a conference, exhibition and...
by AKU | Oct 25, 2017 | Uncategorized
Last Month the National Alkaptonuria Centres’ new data controller, Leanne joined the NAC team. Her role will be assisting Hollie with the running of the centre and making sure all information is entered clearly and accurately. In this week’s blog, Leanne tells us a...
by AKU | Oct 12, 2017 | Uncategorized
So, me (Hannah from the gait lab) and my friend Steven have decided to take on the challenge of climbing to Everest Base Camp on November 14th. Of course, the charity of our choice is the AKU Society. The trek will take 15 days in total and will take us to the highest...
by AKU | Aug 8, 2017 | Uncategorized
On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they...
