Our Seventh Patient Workshop

Our Seventh Patient Workshop

On Wednesday 22nd November, the AKU Society held its seventh Patient Workshop. Alkaptonuria (AKU) patients from all over the country, with their families and carers, flocked to the Bluecoat in Liverpool. A day of advice and networking was in store for them. Lesley...
Hannah Shepherd’s Everest Story

Hannah Shepherd’s Everest Story

Here at the AKU Society we are very lucky to have so many talented and dedicated people working in association with us.Hannah Shepherd, of  Liverpool John Moores University, has been the gait analyst for the  National Alkaptonuria Centre since 2015. The NAC...
Introducing Reece: Admin and Communications Officer

Introducing Reece: Admin and Communications Officer

Last week we welcomed Reece to the AKU Society’s team in Cambridge. As Admin and Communications Officer, he will be responsible for the team’s social media output, as well as a lot of our online and print advertising. His job also involves administering our patient...
A Patient’s Perspective: Best Practice 2017

A Patient’s Perspective: Best Practice 2017

On 18th and 19th October, Lesley, our Patient Support Manager, and Carol, one of our AKU patients, went to the Birmingham NEC to run a stand at Best Practice 2017. In this week’s blog, we find out how they got on. Best Practice – a conference, exhibition and...