by AKU | Nov 25, 2015 | Uncategorized
Today is a very important day in the history of AKU, as it is Sir Archibald Garrod’s birthday! Sir Archibald Garrod discovered AKU in 1902; the first genetic disease ever to be discovered. In this week’s blog we celebrate his fantastic achievements! On 25th...
by AKU | Nov 17, 2015 | Uncategorized
Media trust is a charity that gives a voice to other charities, community groups and young people by providing them with a range of media training from experts in the field. Last week Eve attended the Media Trust Summit, where a number of charities and...
by AKU | Nov 11, 2015 | Uncategorized
Last week, Oliver attended the project board meeting of ASTERIX. Oliver represents the DevelopAKUre clinical trials on their patient think tank, and in today’s blog explains how the involvement helps the AKU Society. ASTERIX is a European Commission funded...
by AKU | Nov 4, 2015 | Uncategorized
Rare disease patients often report feeling lonely and isolated due to the lack of understanding surrounding their disease. Patients are sparsely located all over the world and it can be difficult to identify and connect with other patients. This is why we...
